Chapter 3: Dr. Google

Once armed with the specific type of lymphoma, the natural next step was a rendezvous with “Dr. Google” – that phase where you voraciously search for every ounce of medical information about your condition.

But here’s the thing about surfing the web for health insights: you’re swimming in a sea of data, some of which is likely outdated. My initial dive into MCL statistics was a bit jarring. Apparently, it typically strikes males around 65 years old, often in the advanced stage 4. Naturally, I wanted to know about life expectancy, and my search suggested an average of 5 years. Cue the shock because I felt fine.

As I absorbed this seemingly bleak information, a lightbulb flickered. It dawned on me that the articles I was reading might be stuck in a time warp. Many were older than a decade. So, a change of strategy was in order. By filtering my search to articles less than 3 years old, the narrative transformed. Hopeful content emerged, discussing treatment advancements, ongoing clinical studies, and improved life expectancies.

A beacon of optimism came in the form of professional white papers co-authored by researchers at the University of Wisconsin Health in Madison. The Carbone Cancer Center at UW Health had MCL experts. These whitepapers not only bolstered my hope but armed me with knowledge to ask informed questions during my next rendezvous with the Oncologist to review my test results.

Here’s a piece of advice from my “Dr. Google” expedition: tread carefully on the internet health trail. Seek out current articles and look for institutions with a proven track record in dealing with your specific condition. Your peace of mind might just depend on it.

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